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Nursing, Writing, and Humanity: An Interview with Theresa Brown

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Hello

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and welcome to the latest

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installment of the University of

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Pittsburgh Humanities podcast, a

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series devoted to exploring the

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humanities, their intersections with

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other disciplines, and their value

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in the public world.

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I'm Dan Kubis, assistant director of

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the Humanities Center at Pitt.

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My guest today is Theresa Brown,

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nurse, columnist, and author of

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The Shift: One Nurse, Twelve

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Hours, Four Patients' Lives.

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Even if all I do is go in and flush

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an I.V. line, I try to always just

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reach down and just touch their hand

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when I'm done because it's also

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a way of saying, "I see

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you.

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You're not just a task, but

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you're a person." And that's

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probably the connection that nurses

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need to make, which is

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different from physicians but

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equally as important.

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Theresa began her career as a writer

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in 2008 when she published an essay

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in the New York Times about a

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dramatic and emotional experience

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she had with a dying patient.

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The piece received national

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attention and was anthologized in

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the Best American Science Writing

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and the Best American Medical

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Writing in 2009.

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Since then, she has written dozens

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of pieces about nursing and has

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become a leading voice for nurses

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and nurse advocacy across the

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country.

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Her first book, Critical Care, was

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published in 2010 and is widely

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used as a textbook in nursing

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schools.

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Theresa's writing frequently pulls

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back the curtain on the experiences

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and challenges that nurses face in

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their daily work.

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Sometimes this reveals frustrating

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working conditions or difficulties

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dealing with hospital

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administration. But just as

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frequently, it shows the strength,

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skill, and commitment that nurses

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need to provide their patients with

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the best care they can.

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So it's no surprise that President

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Obama quoted from Theresa's blog

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when he was advocating for the

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Affordable Care Act in 2009.

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In

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what she calls her past life,

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Theresa received a Ph.D.

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in English from the University of

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Chicago and was an English professor

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at Tufts University.

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I began by asking her about this

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past and about the somewhat

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nontraditional path she took to

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becoming a nurse.

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As I've said many times before, this

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is the million-dollar question.

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Why would an English professor

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become a nurse?

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And there are a lot of people who

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thought I was nuts. So I think

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I've convinced some I'm not.

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But essentially,

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my dad was a professor, and growing

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up it just seemed like a really

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great job.

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You could get paid to be in this

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world of ideas and books.

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And I loved that.

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I got my Ph.D.

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in English. I was teaching at Tufts,

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and I found out that the job itself

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for me was not the ideal.

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I liked it. I think I was good

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enough at it, but it just didn't

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quite do it for me.

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So it's kind of like, oh, now,

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what am I going to be when I grow

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up? And then, I became

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a mom in the middle of that and

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had our son, and then got pregnant

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with twins.

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And that just caused

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a huge life change

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and in hard ways because of the lack

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of sleep and all the laundry,

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but in really great ways, like

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all the love and the fun.

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And then I thought, "Oh, well,

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this is the kind of job I want to

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do, but what kind of job is that?"

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And I had midwives

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for that pregnancy, and I was

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telling a friend of mine who's a

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nurse, "Well, I just thought the

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midwives had the coolest job in the

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world." And she said, "Theresa,

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you could do that job."

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And it had never occurred to me

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that I could become a nurse.

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But then I did it.

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Well, I want to also ask

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you, then, about your description in

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the beginning of your first book,

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Critical Care. You

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made your change from being

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an English professor to being a

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nurse, and it felt right

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to you. But it took a while for

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there to be a kind of crystallized

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moment where you realized why it

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felt right. And you talk about an

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experience you have with an 11 year

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old boy as being a moment where

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you did have that realization and

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talking with him at night about the

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condition that he was in.

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Can you talk a little bit about that

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moment and what it was in particular

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about that that caused that

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realization for you?

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Well, it was my last night

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of clinical as a student.

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So really the end of my

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journey as a student nurse.

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And I was

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not working on an oncology floor,

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but he was an oncology patient.

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Came in with his dad,

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and they'd been there a lot and were

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obviously trying to make it fun

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by eating a big bag of potato chips

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and watching TV.

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But it's not

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really fun.

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I mean, I admired the effort.

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And then, in the middle of the

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night, he just started to feel

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really terrible

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and most

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likely was septic

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and really low blood pressure.

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And I ended up--

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the nurse I was working with, we

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ended up having to send

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him to the pediatric intensive care

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unit, and his dad

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slept through a lot of it, which

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at the time was kind of shocking

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to me. And then afterward, when he

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woke up, and I saw the look on his

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face. I realized that he had

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just been through this so many times

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that either he was sound

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asleep or he just couldn't face it.

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And then, thank goodness that we

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were there, right?

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So that he didn't have to.

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But the amalgam

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of need and

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being able to care for someone

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and having to do

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it on their time,

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but also being able to help

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them.

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That combination

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is what really sold me.

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And that nursing is so

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intimate.

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Of course, we had to call in an ICU

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fellow and the resident,

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but it was really me

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there with him. I love

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that, that close connection with

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people.

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Yeah.

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Speaking about that connection, one

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thing that I really liked reading

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about also in your first book

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is you write about not only

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how much you enjoyed the

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process of hearing people and being

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there for them but also you found it

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important, despite the fact that you

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had been counseled in

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nursing school, not to share

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that much-- not to disclose personal

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details. You found that that was a

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really important thing for you to be

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doing, not only to be hearing what

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people say but also to be sharing.

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And that you talk about a-- and you

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tell an anecdote about feeling like

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you can't use cell phones.

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Something like that.

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Little details.

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But they're important for you.

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And that was I really thought that

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was interesting that you can create

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that kind of two-way street with

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your patients.

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Yeah. And I think it's all about to

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use our words now, boundaries

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and appropriateness.

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I mean, that was the situation.

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In fact, I call that chapter

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Openings because the patient had

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this huge opening in his abdomen

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from surgeries. And it was about

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that opening and also me finding

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a way to communicate with him

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because he was having a really hard

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time.

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But I found also that even

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on a much more basic level, people

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want to know that I'm a person

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because it makes them feel like

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they're not just a patient.

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So in the hospital, people

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would say, "Well, how are you

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doing?" And they really wanted

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an answer.

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They didn't want me to just say,"

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I'm fine." Now, they didn't want

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me to say, "Oh, my God, I'm

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overwhelmed. Our cat just died.

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And the heater won't work."

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Too much sharing is also bad.

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Yeah. And they don't want

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to hear about all

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my pain. And that's not why I'm

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there. But they want

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to feel like I'm a human.

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Because they're human then too.

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Another thing that I thought was

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great in terms of

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things you learned while being a

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nurse, and you write about this in

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The Shift, is the importance of

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physical contact.

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You reference another, a physician

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writer, Abraham Verghese, who talks

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a lot about that.

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And for him, he talks

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about touch being important not only

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in terms of making a diagnosis but

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also in terms of getting

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a patient to join you

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in his or her

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care of something.

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Have you found that it's a similar

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kind of importance that touch plays

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a similar role for you?

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I do think it really matters.

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We don't diagnose as nurses, so

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it's not at that level, but

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it really establishes a sense of

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trust and also connection.

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And it's

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also a way of saying, "You know, no

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matter what's going on with you, if

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you have a terrible rash, if

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you're in pain, if

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you

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don't smell very good, because we

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need to get you cleaned up.

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You know, I am not

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afraid of your body." And

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I think it's really important to

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00:08:18.460 --> 00:08:20.289
say that to people.

287
00:08:20.290 --> 00:08:22.239
Yeah. I remember a talk

288
00:08:22.240 --> 00:08:24.189
from Abraham Verghese where he

289
00:08:24.190 --> 00:08:25.514
talks about there's a

290
00:08:27.130 --> 00:08:28.899
belief that a patient has that the

291
00:08:28.900 --> 00:08:30.819
doctor will always be there

292
00:08:30.820 --> 00:08:32.829
for him and do what the doctor

293
00:08:32.830 --> 00:08:34.178
can to care for this patient.

294
00:08:34.179 --> 00:08:35.229
And the touch is the thing that kind

295
00:08:35.230 --> 00:08:36.219
of seals that.

296
00:08:36.220 --> 00:08:37.719
Yeah, I think that's right.

297
00:08:37.720 --> 00:08:38.720
Yeah.

298
00:08:38.830 --> 00:08:40.029
And with nurses too.

299
00:08:42.190 --> 00:08:43.509
It's that even if-- I think I wrote

300
00:08:43.510 --> 00:08:44.889
about this in the shift. Even if all

301
00:08:44.890 --> 00:08:46.599
I do is go in and flush an I.V.

302
00:08:46.600 --> 00:08:48.519
line, I try to always just

303
00:08:48.520 --> 00:08:50.829
reach out and just touch their hand

304
00:08:50.830 --> 00:08:53.079
when I'm done because it's also

305
00:08:53.080 --> 00:08:55.119
a way of saying, "I see

306
00:08:55.120 --> 00:08:55.899
you.

307
00:08:55.900 --> 00:08:57.879
You're not just a task, but

308
00:08:57.880 --> 00:08:59.499
you're a person." And that's

309
00:08:59.500 --> 00:09:01.659
probably the connection

310
00:09:01.660 --> 00:09:03.849
that nurses need to make.

311
00:09:03.850 --> 00:09:06.129
Which is different from physicians

312
00:09:06.130 --> 00:09:07.569
but equally as important.

313
00:09:07.570 --> 00:09:09.669
Yeah, I'm reminded

314
00:09:09.670 --> 00:09:11.649
of some of when you

315
00:09:11.650 --> 00:09:13.389
talk about in nursing school, you

316
00:09:13.390 --> 00:09:14.799
learn not to disclose too many

317
00:09:14.800 --> 00:09:16.239
things, but you learned how

318
00:09:16.240 --> 00:09:18.279
important it was to do that.

319
00:09:18.280 --> 00:09:19.479
You talk also in some of your

320
00:09:19.480 --> 00:09:21.069
writing about the fact that you were

321
00:09:21.070 --> 00:09:22.959
not prepared in

322
00:09:22.960 --> 00:09:24.729
nursing school to do some of the

323
00:09:24.730 --> 00:09:26.199
things that have been the most

324
00:09:26.200 --> 00:09:27.519
important parts of your work.

325
00:09:27.520 --> 00:09:28.869
Talking about death, I'm thinking

326
00:09:28.870 --> 00:09:29.919
about in particular. This isn't

327
00:09:29.920 --> 00:09:31.569
something that you're prepared for.

328
00:09:31.570 --> 00:09:34.089
Have you found that you did

329
00:09:34.090 --> 00:09:36.129
need to learn a lot

330
00:09:36.130 --> 00:09:37.179
on the job? I suppose it's

331
00:09:37.180 --> 00:09:39.129
inevitable that you will have

332
00:09:39.130 --> 00:09:40.569
to do that. But could you have been

333
00:09:40.570 --> 00:09:42.069
prepared better for those things?

334
00:09:42.070 --> 00:09:43.089
Is it a problem with nursing

335
00:09:43.090 --> 00:09:44.349
education that these things aren't a

336
00:09:44.350 --> 00:09:46.563
part of the education process?

337
00:09:46.564 --> 00:09:47.799
Yeah, I think so.

338
00:09:47.800 --> 00:09:48.800
I mean, I went to Pitt. So

339
00:09:50.410 --> 00:09:51.969
I actually feel like it was a really

340
00:09:51.970 --> 00:09:53.799
great program, and I got what

341
00:09:53.800 --> 00:09:55.719
I needed. But yeah.

342
00:09:55.720 --> 00:09:57.062
And I think medical students too.

343
00:09:57.063 --> 00:09:58.899
Particularly on the subject of death

344
00:09:58.900 --> 00:10:01.059
and dying, they're starting to

345
00:10:01.060 --> 00:10:02.709
learn more about it.

346
00:10:02.710 --> 00:10:04.389
And I'm guessing that nursing

347
00:10:04.390 --> 00:10:05.739
schools are, too, although I don't

348
00:10:05.740 --> 00:10:07.269
know about that.

349
00:10:07.270 --> 00:10:09.009
So it might have just been that

350
00:10:09.010 --> 00:10:10.899
everybody was so busy

351
00:10:10.900 --> 00:10:12.789
hiding from that topic, and now

352
00:10:12.790 --> 00:10:14.949
we've brought it out from under

353
00:10:14.950 --> 00:10:15.950
the shadow.

354
00:10:17.290 --> 00:10:19.539
But yeah. There's definitely

355
00:10:19.540 --> 00:10:21.399
actually all kinds of things about

356
00:10:21.400 --> 00:10:23.829
communication that

357
00:10:23.830 --> 00:10:25.779
would make the first job easier

358
00:10:25.780 --> 00:10:27.729
if we learned more about

359
00:10:27.730 --> 00:10:29.349
them. What do doctors want to hear

360
00:10:29.350 --> 00:10:32.199
from us? How is it best to talk to

361
00:10:32.200 --> 00:10:33.139
another nurse?

362
00:10:33.140 --> 00:10:34.569
We learn a lot about talking to

363
00:10:34.570 --> 00:10:36.219
patients, but we don't learn about

364
00:10:36.220 --> 00:10:37.270
talking to each other.

365
00:10:38.470 --> 00:10:39.759
Yeah. I mean, it's interesting.

366
00:10:39.760 --> 00:10:40.839
I also wanted to ask you a little

367
00:10:40.840 --> 00:10:42.969
bit about working in

368
00:10:42.970 --> 00:10:43.970
hospital settings. Because

369
00:10:45.340 --> 00:10:47.049
one of the things I found that was

370
00:10:47.050 --> 00:10:49.059
really interesting in The Shift

371
00:10:49.060 --> 00:10:50.799
is you talk about one of your

372
00:10:50.800 --> 00:10:52.119
patients there, a patient named

373
00:10:52.120 --> 00:10:53.409
Sheila, and

374
00:10:54.520 --> 00:10:56.589
the time that you spend dealing--

375
00:10:56.590 --> 00:10:58.209
she's been misdiagnosed in the book,

376
00:10:58.210 --> 00:11:00.189
and you spend some time

377
00:11:00.190 --> 00:11:01.149
talking with her.

378
00:11:01.150 --> 00:11:02.319
And she's very concerned.

379
00:11:02.320 --> 00:11:03.159
Her family's there.

380
00:11:03.160 --> 00:11:04.599
They're very concerned.

381
00:11:04.600 --> 00:11:06.009
And you write about the time that

382
00:11:06.010 --> 00:11:07.179
you spent talking with all of them

383
00:11:07.180 --> 00:11:08.799
about her condition.

384
00:11:08.800 --> 00:11:10.989
And then, you say afterward that

385
00:11:10.990 --> 00:11:12.459
even though it may be the most

386
00:11:12.460 --> 00:11:13.659
important thing you do during your

387
00:11:13.660 --> 00:11:15.519
shift, it goes unrecorded.

388
00:11:15.520 --> 00:11:16.520
Right.

389
00:11:17.230 --> 00:11:18.069
But you also spend a lot of time

390
00:11:18.070 --> 00:11:19.119
talking about how much work you have

391
00:11:19.120 --> 00:11:20.859
to do to record so many other parts

392
00:11:20.860 --> 00:11:22.689
of your job. Yet this is the thing

393
00:11:22.690 --> 00:11:24.549
that made me want to ask is it

394
00:11:24.550 --> 00:11:26.349
the case, then, that hospitals are

395
00:11:26.350 --> 00:11:28.389
not incentivizing

396
00:11:28.390 --> 00:11:30.249
the most important part of the job

397
00:11:30.250 --> 00:11:32.049
that you can do as a nurse?

398
00:11:32.050 --> 00:11:33.759
Wow. What an amazingly smart

399
00:11:33.760 --> 00:11:34.779
question.

400
00:11:34.780 --> 00:11:36.399
Yes, I think that is true.

401
00:11:36.400 --> 00:11:37.449
No one's ever put it like that

402
00:11:37.450 --> 00:11:38.259
before.

403
00:11:38.260 --> 00:11:40.269
Yes. And yet still,

404
00:11:40.270 --> 00:11:42.099
the expectation is that we will

405
00:11:42.100 --> 00:11:43.899
be empathic and we will be there for

406
00:11:43.900 --> 00:11:44.889
people.

407
00:11:44.890 --> 00:11:47.139
But then, there's so many more

408
00:11:47.140 --> 00:11:48.969
task-oriented things that we get

409
00:11:48.970 --> 00:11:51.039
evaluated on that

410
00:11:51.040 --> 00:11:53.739
it really is not

411
00:11:53.740 --> 00:11:54.739
incentivized.

412
00:11:54.740 --> 00:11:56.149
Hate to use that word, but it's the

413
00:11:56.150 --> 00:11:57.239
right word, I think.

414
00:11:57.240 --> 00:11:58.240
Yeah.

415
00:11:59.120 --> 00:12:01.279
We're expected to do

416
00:12:01.280 --> 00:12:02.659
the human things that actually

417
00:12:02.660 --> 00:12:04.459
nurses love doing, but we're not

418
00:12:04.460 --> 00:12:06.289
judged for doing those

419
00:12:06.290 --> 00:12:07.789
things unless you really, really

420
00:12:07.790 --> 00:12:08.809
screw it up.

421
00:12:08.810 --> 00:12:09.810
You know, somebody complains. And

422
00:12:11.420 --> 00:12:12.739
I was just at a conference,

423
00:12:12.740 --> 00:12:14.149
actually, where people were talking

424
00:12:14.150 --> 00:12:15.480
a lot and a lot about that.

425
00:12:15.481 --> 00:12:16.481
But thinking

426
00:12:18.770 --> 00:12:20.509
that small fixes can make a big

427
00:12:20.510 --> 00:12:22.369
difference. And I

428
00:12:22.370 --> 00:12:23.359
don't think so.

429
00:12:23.360 --> 00:12:25.339
I think we've put our values

430
00:12:25.340 --> 00:12:26.959
on the wrong things, and there's got

431
00:12:26.960 --> 00:12:27.960
to be a change in

432
00:12:28.850 --> 00:12:29.850
that way.

433
00:12:31.280 --> 00:12:32.959
Do you have any thoughts about some

434
00:12:32.960 --> 00:12:34.819
kind of big-picture changes that

435
00:12:34.820 --> 00:12:36.739
might move us in a

436
00:12:36.740 --> 00:12:38.299
direction where some of these

437
00:12:39.860 --> 00:12:41.599
human and very important parts of

438
00:12:41.600 --> 00:12:43.579
being a nurse could take center

439
00:12:43.580 --> 00:12:45.139
stage more than they currently do?

440
00:12:45.140 --> 00:12:46.369
I think there's two issues.

441
00:12:46.370 --> 00:12:49.579
One is now documentation

442
00:12:49.580 --> 00:12:50.959
has gotten to the point where it

443
00:12:50.960 --> 00:12:52.309
seems like we're supposed to record

444
00:12:52.310 --> 00:12:53.310
everything.

445
00:12:54.380 --> 00:12:56.689
Every little detail in triplicate

446
00:12:56.690 --> 00:12:58.369
from multiple dropdown menus.

447
00:12:58.370 --> 00:13:00.019
And it's extremely time-consuming

448
00:13:00.020 --> 00:13:02.359
and alienating and

449
00:13:02.360 --> 00:13:04.699
doesn't lead to supporting

450
00:13:04.700 --> 00:13:06.799
nurses giving whole care

451
00:13:06.800 --> 00:13:08.480
to the patient. So there's that.

452
00:13:09.560 --> 00:13:11.419
But that, I think, springs from a

453
00:13:11.420 --> 00:13:13.999
kind of lack of trust in the value

454
00:13:14.000 --> 00:13:16.249
of actual human

455
00:13:16.250 --> 00:13:17.539
connection.

456
00:13:17.540 --> 00:13:19.399
And I see as an analog to

457
00:13:19.400 --> 00:13:21.229
this what's going on in education.

458
00:13:21.230 --> 00:13:23.119
We can't just trust that if we have

459
00:13:23.120 --> 00:13:24.799
good teachers and normal-sized

460
00:13:24.800 --> 00:13:26.839
classrooms and standard

461
00:13:26.840 --> 00:13:28.099
equipment, that they'll do a good

462
00:13:28.100 --> 00:13:29.179
job. There has to be all this

463
00:13:29.180 --> 00:13:31.759
evaluating and standardization

464
00:13:31.760 --> 00:13:32.760
and looking at metrics. And

465
00:13:34.070 --> 00:13:35.689
I'm not saying there's no value to

466
00:13:35.690 --> 00:13:37.609
any of that, but

467
00:13:37.610 --> 00:13:39.259
when you're talking about

468
00:13:39.260 --> 00:13:41.359
human-to-human interaction, you've

469
00:13:41.360 --> 00:13:43.669
got to trust at some level

470
00:13:43.670 --> 00:13:45.589
that you

471
00:13:45.590 --> 00:13:47.209
pick the right people. And they can

472
00:13:47.210 --> 00:13:49.099
pull that off, and they can achieve

473
00:13:49.100 --> 00:13:50.689
from that interaction what they are

474
00:13:50.690 --> 00:13:52.729
meant to achieve.

475
00:13:52.730 --> 00:13:54.829
And maybe you can't measure

476
00:13:54.830 --> 00:13:55.830
that,

477
00:13:56.810 --> 00:13:58.369
or you need to think really, really

478
00:13:58.370 --> 00:14:00.259
creatively about how to

479
00:14:00.260 --> 00:14:01.429
measure it.

480
00:14:01.430 --> 00:14:02.929
And we're not doing that.

481
00:14:02.930 --> 00:14:03.859
Yeah.

482
00:14:03.860 --> 00:14:06.169
In The Shift, you write about two

483
00:14:06.170 --> 00:14:08.059
articles by a psychiatrist, Leonard

484
00:14:08.060 --> 00:14:09.409
Stein, The Doctor-Nurse Game.

485
00:14:09.410 --> 00:14:10.399
You say these are two of the best

486
00:14:10.400 --> 00:14:11.269
articles you know of.

487
00:14:11.270 --> 00:14:13.099
He wrote in 1967 about it and then

488
00:14:13.100 --> 00:14:14.959
again in 1990, revisited

489
00:14:14.960 --> 00:14:16.429
the issue. Said there had been some

490
00:14:16.430 --> 00:14:17.389
changes. Can you talk a little bit

491
00:14:17.390 --> 00:14:19.639
about those articles and why they

492
00:14:19.640 --> 00:14:21.319
mean so much to you?

493
00:14:21.320 --> 00:14:23.149
Yeah. And I

494
00:14:23.150 --> 00:14:24.559
love it that those articles are just

495
00:14:24.560 --> 00:14:25.710
so old school.

496
00:14:27.680 --> 00:14:29.149
There's no data, but what they're

497
00:14:29.150 --> 00:14:31.009
saying rings totally true.

498
00:14:31.010 --> 00:14:33.169
So he calls it The Doctor-Nurse

499
00:14:33.170 --> 00:14:35.689
Game in the sense of a psychological

500
00:14:35.690 --> 00:14:37.775
game, not like a game like Monopoly.

501
00:14:38.960 --> 00:14:41.359
The communication is always loaded

502
00:14:41.360 --> 00:14:42.649
in some way.

503
00:14:42.650 --> 00:14:44.179
So in the earlier version of the

504
00:14:44.180 --> 00:14:46.789
article, he says nurses

505
00:14:46.790 --> 00:14:49.009
have to act as if every idea

506
00:14:49.010 --> 00:14:50.749
is actually the physician's idea.

507
00:14:50.750 --> 00:14:51.750
So

508
00:14:52.880 --> 00:14:54.799
I make a phone call saying, "Mrs.

509
00:14:54.800 --> 00:14:56.869
Jones is vomiting.

510
00:14:56.870 --> 00:14:58.309
Do you think that Zofran would be a

511
00:14:58.310 --> 00:15:00.409
good idea?" A standard

512
00:15:00.410 --> 00:15:01.281
antiemetic drug.

513
00:15:01.282 --> 00:15:03.319
And everything has to be presented

514
00:15:03.320 --> 00:15:04.249
like that. And then.

515
00:15:04.250 --> 00:15:06.049
In the revision of The Doctor-Nurse

516
00:15:06.050 --> 00:15:07.879
Game, he says that

517
00:15:07.880 --> 00:15:09.306
now nurses are "stubborn

518
00:15:10.370 --> 00:15:13.489
rebels." We're going from

519
00:15:13.490 --> 00:15:15.619
an era where women especially

520
00:15:15.620 --> 00:15:17.629
were more compliant to the-- women's

521
00:15:17.630 --> 00:15:19.069
movement starting, right?

522
00:15:19.070 --> 00:15:20.989
We're having political protests.

523
00:15:20.990 --> 00:15:22.819
So the nurse is now a stubborn

524
00:15:22.820 --> 00:15:24.799
rebel, and the same

525
00:15:24.800 --> 00:15:26.329
phone call would turn into, "Well,

526
00:15:26.330 --> 00:15:27.709
Mrs. Jones is vomiting.

527
00:15:27.710 --> 00:15:29.029
Are you going to do anything about

528
00:15:29.030 --> 00:15:30.030
that?"

529
00:15:30.620 --> 00:15:31.489
Very different tone.

530
00:15:31.490 --> 00:15:32.490
Yes.

531
00:15:33.320 --> 00:15:35.269
And what I like is I will admit

532
00:15:35.270 --> 00:15:37.039
that I've done both those things and

533
00:15:37.040 --> 00:15:38.179
more.

534
00:15:38.180 --> 00:15:40.730
I have wheedled, I have argued.

535
00:15:41.900 --> 00:15:43.759
And what's sad is

536
00:15:43.760 --> 00:15:45.799
that it seems like there's not

537
00:15:45.800 --> 00:15:47.929
that many situations where I can say

538
00:15:47.930 --> 00:15:49.219
a doctor and I just talk to each

539
00:15:49.220 --> 00:15:51.089
other as colleagues and equals.

540
00:15:51.090 --> 00:15:53.239
That there's always

541
00:15:53.240 --> 00:15:54.709
a feeling of, okay, how am I going

542
00:15:54.710 --> 00:15:56.539
to get what I want

543
00:15:56.540 --> 00:15:58.459
here? And even more

544
00:15:58.460 --> 00:16:00.259
than that, how am I going to get

545
00:16:00.260 --> 00:16:02.179
this person to share

546
00:16:02.180 --> 00:16:04.249
his or her knowledge with

547
00:16:04.250 --> 00:16:06.349
me so together we can make the best

548
00:16:06.350 --> 00:16:07.999
decision?

549
00:16:08.000 --> 00:16:09.589
Well, you mentioned the bullying

550
00:16:09.590 --> 00:16:11.209
being another topic. I did not know

551
00:16:11.210 --> 00:16:13.249
that this was as big an issue

552
00:16:13.250 --> 00:16:15.139
as it was before reading your work,

553
00:16:15.140 --> 00:16:16.339
but you talk about your experience

554
00:16:16.340 --> 00:16:17.340
with it between nurses.

555
00:16:18.740 --> 00:16:20.719
And after

556
00:16:20.720 --> 00:16:21.799
learning a little bit about it from

557
00:16:21.800 --> 00:16:22.969
your work, I kind of looked into it

558
00:16:22.970 --> 00:16:23.989
and realized there's a vast amount

559
00:16:23.990 --> 00:16:25.789
of literature, and that is a big

560
00:16:25.790 --> 00:16:27.109
problem within the field.

561
00:16:27.110 --> 00:16:28.110
Yes.

562
00:16:28.940 --> 00:16:29.929
You write a little bit about it

563
00:16:29.930 --> 00:16:32.059
being related to this hierarchy

564
00:16:32.060 --> 00:16:33.919
issue and where kind

565
00:16:33.920 --> 00:16:36.894
of nurses fall on that hierarchy.

566
00:16:36.895 --> 00:16:37.895
Being

567
00:16:38.720 --> 00:16:40.369
lower down on the totem pole, as you

568
00:16:40.370 --> 00:16:42.559
say, when things go wrong,

569
00:16:42.560 --> 00:16:44.569
you take it out on other nurses.

570
00:16:45.590 --> 00:16:46.909
Have there been any changes since

571
00:16:46.910 --> 00:16:48.259
you've been in the field in this?

572
00:16:48.260 --> 00:16:50.299
Are there promising

573
00:16:50.300 --> 00:16:51.829
attempts being made to address the

574
00:16:51.830 --> 00:16:52.830
issue?

575
00:16:53.270 --> 00:16:54.409
Well, first of all, the issue being

576
00:16:54.410 --> 00:16:55.579
a lot more public.

577
00:16:55.580 --> 00:16:57.469
So I see that

578
00:16:57.470 --> 00:16:59.389
as a huge change, and

579
00:16:59.390 --> 00:17:00.559
people acknowledging it as a

580
00:17:00.560 --> 00:17:01.999
problem.

581
00:17:02.000 --> 00:17:03.979
I've given talks on this, and people

582
00:17:03.980 --> 00:17:06.259
ask me, "Do you know a place

583
00:17:06.260 --> 00:17:07.489
where this really works?

584
00:17:07.490 --> 00:17:09.618
What can we do about this?"

585
00:17:09.619 --> 00:17:12.049
The best talk opportunity

586
00:17:12.050 --> 00:17:13.879
I had was to talk

587
00:17:13.880 --> 00:17:15.889
to a group of not

588
00:17:15.890 --> 00:17:17.449
malpractice lawyers but people who

589
00:17:17.450 --> 00:17:19.368
do risk assessment for health

590
00:17:19.369 --> 00:17:20.299
care systems.

591
00:17:20.300 --> 00:17:22.159
And it was one of those few moments

592
00:17:22.160 --> 00:17:23.539
where I felt like from my mouth to

593
00:17:23.540 --> 00:17:25.699
God's ears because

594
00:17:25.700 --> 00:17:27.559
I could say to them, "You know,

595
00:17:27.560 --> 00:17:29.149
you should really care about this

596
00:17:29.150 --> 00:17:31.159
because this is what

597
00:17:31.160 --> 00:17:33.049
can cause an event that

598
00:17:33.050 --> 00:17:35.089
actually ends up leading to a huge

599
00:17:35.090 --> 00:17:37.009
malpractice suit." And there

600
00:17:37.010 --> 00:17:39.709
had just actually been one announced

601
00:17:39.710 --> 00:17:40.909
in Pittsburgh. I won't go into the

602
00:17:40.910 --> 00:17:42.259
details. Like right before I gave my

603
00:17:42.260 --> 00:17:44.089
talk, which was perfect because the

604
00:17:44.090 --> 00:17:46.039
whole issue was a

605
00:17:46.040 --> 00:17:47.299
middle-of-the-night communication

606
00:17:47.300 --> 00:17:49.339
between a nurse and a doctor.

607
00:17:49.340 --> 00:17:51.019
And I said, "You know, you can look

608
00:17:51.020 --> 00:17:53.029
at this, and you can say,

609
00:17:53.030 --> 00:17:54.199
'Seems like this nurse didn't know

610
00:17:54.200 --> 00:17:55.909
how to do her job.' And that may be

611
00:17:55.910 --> 00:17:57.079
what happened.

612
00:17:57.080 --> 00:17:58.969
Or it may be that there's

613
00:17:58.970 --> 00:18:00.979
a whole history of bad communication

614
00:18:00.980 --> 00:18:02.659
between this physician and this set

615
00:18:02.660 --> 00:18:04.099
of nurses.

616
00:18:04.100 --> 00:18:05.100
And someone

617
00:18:06.650 --> 00:18:08.329
ended up having a really, really,

618
00:18:08.330 --> 00:18:10.159
really bad outcome as a result

619
00:18:10.160 --> 00:18:12.229
of that." So that's what I hope

620
00:18:12.230 --> 00:18:14.209
is that people are

621
00:18:14.210 --> 00:18:16.399
starting to understand

622
00:18:16.400 --> 00:18:18.259
that letting

623
00:18:18.260 --> 00:18:20.089
these bad boy doctors -

624
00:18:20.090 --> 00:18:21.230
and it usually is bad boys -

625
00:18:22.940 --> 00:18:25.639
behave the way they are is really

626
00:18:25.640 --> 00:18:28.549
detrimental to the system overall.

627
00:18:28.550 --> 00:18:30.409
And the other point to make is that

628
00:18:30.410 --> 00:18:31.789
people always say, "Well, it's these

629
00:18:31.790 --> 00:18:34.549
doctors who are the big earners."

630
00:18:34.550 --> 00:18:36.529
Those doctors are not earning

631
00:18:36.530 --> 00:18:38.479
all that money for the hospital

632
00:18:38.480 --> 00:18:40.849
and themselves by being

633
00:18:40.850 --> 00:18:42.259
jerks and abusive.

634
00:18:42.260 --> 00:18:44.389
It's in spite of that.

635
00:18:44.390 --> 00:18:46.279
So that can't be an

636
00:18:46.280 --> 00:18:47.089
excuse.

637
00:18:47.090 --> 00:18:49.009
And when I talk to people who

638
00:18:49.010 --> 00:18:50.959
work with physicians who have

639
00:18:50.960 --> 00:18:52.879
these issues, they say, "Actually,

640
00:18:52.880 --> 00:18:54.319
you know, the doctors don't really

641
00:18:54.320 --> 00:18:55.939
like how they're behaving either.

642
00:18:55.940 --> 00:18:57.019
I mean, it's not like these are

643
00:18:57.020 --> 00:18:58.399
sociopaths.

644
00:18:58.400 --> 00:19:00.439
They're just really overwhelmed

645
00:19:00.440 --> 00:19:01.646
and stressed, and they

646
00:19:03.020 --> 00:19:05.119
have issues, right?" But

647
00:19:05.120 --> 00:19:07.219
for them, the opportunity to learn

648
00:19:07.220 --> 00:19:09.079
a different way to be

649
00:19:09.080 --> 00:19:10.459
tends to come as a relief.

650
00:19:10.460 --> 00:19:11.610
And if it doesn't, then they

651
00:19:12.890 --> 00:19:14.379
leave. They just find another job.

652
00:19:17.690 --> 00:19:19.639
So you've spent, I think,

653
00:19:19.640 --> 00:19:21.469
most of your career

654
00:19:21.470 --> 00:19:22.939
as a nurse working in a hospital

655
00:19:22.940 --> 00:19:24.589
setting. But recently, you've

656
00:19:24.590 --> 00:19:26.239
changed, and you provide in-home

657
00:19:26.240 --> 00:19:27.289
end-of-life care now.

658
00:19:27.290 --> 00:19:28.429
Is that right? So you're outside the

659
00:19:28.430 --> 00:19:28.969
hospital setting?

660
00:19:28.970 --> 00:19:29.422
Yes.

661
00:19:29.423 --> 00:19:31.249
Has working in

662
00:19:31.250 --> 00:19:33.133
that-- has that change allowed you

663
00:19:33.134 --> 00:19:35.089
to focus more

664
00:19:35.090 --> 00:19:37.039
on doing some of the things that you

665
00:19:37.040 --> 00:19:38.080
feel are most important in nursing?

666
00:19:38.081 --> 00:19:39.889
That is, having a personal

667
00:19:39.890 --> 00:19:41.119
relationship, providing personal

668
00:19:41.120 --> 00:19:43.279
care to someone, and

669
00:19:43.280 --> 00:19:45.139
doing some of those things that you

670
00:19:45.140 --> 00:19:46.969
value most about being a nurse.

671
00:19:46.970 --> 00:19:48.829
Yes. In particular, being able to

672
00:19:48.830 --> 00:19:51.019
have uninterrupted conversations

673
00:19:51.020 --> 00:19:53.899
with people, because honestly, after

674
00:19:53.900 --> 00:19:55.095
working in the hospital and writing

675
00:19:55.096 --> 00:19:56.989
The Shift, I was being sort of

676
00:19:56.990 --> 00:20:00.199
stuck. And one day in the hospital,

677
00:20:00.200 --> 00:20:01.939
I was feeling a little bit burned

678
00:20:01.940 --> 00:20:03.199
out with just the level of

679
00:20:03.200 --> 00:20:05.179
interruption and never being able

680
00:20:05.180 --> 00:20:07.039
to focus on one

681
00:20:07.040 --> 00:20:08.449
person at a time.

682
00:20:08.450 --> 00:20:10.369
And I love it that I can

683
00:20:10.370 --> 00:20:11.479
do that.

684
00:20:11.480 --> 00:20:12.679
It's amazing.

685
00:20:12.680 --> 00:20:14.989
My phone might ring

686
00:20:14.990 --> 00:20:15.990
once.

687
00:20:16.730 --> 00:20:17.779
It's very different from the

688
00:20:17.780 --> 00:20:18.859
experience you describe in The

689
00:20:18.860 --> 00:20:19.079
Shift.

690
00:20:19.080 --> 00:20:20.179
Yes, yes.

691
00:20:20.180 --> 00:20:22.189
And even then, I can usually say,

692
00:20:22.190 --> 00:20:23.149
"I'm at a patient's home.

693
00:20:23.150 --> 00:20:24.250
Can I call you back?" So

694
00:20:26.480 --> 00:20:28.519
I love

695
00:20:28.520 --> 00:20:30.769
that. And it's given me back

696
00:20:30.770 --> 00:20:32.659
a sense of why I

697
00:20:32.660 --> 00:20:35.209
got into this job.

698
00:20:35.210 --> 00:20:37.009
There's also times when I miss the

699
00:20:37.010 --> 00:20:38.869
hospital, and I feel nostalgic,

700
00:20:38.870 --> 00:20:40.999
but I've loved

701
00:20:41.000 --> 00:20:42.439
that aspect of the work.

702
00:20:42.440 --> 00:20:44.479
And I also love, oddly

703
00:20:44.480 --> 00:20:46.369
enough, that people

704
00:20:46.370 --> 00:20:47.895
are in charge in their own homes.

705
00:20:47.896 --> 00:20:49.849
The classic

706
00:20:49.850 --> 00:20:51.949
example of someone who's on oxygen

707
00:20:51.950 --> 00:20:53.239
who still smokes,

708
00:20:54.290 --> 00:20:55.189
which is dangerous.

709
00:20:55.190 --> 00:20:57.679
Right? And my supervisor,

710
00:20:57.680 --> 00:20:58.579
we were talking about this at a

711
00:20:58.580 --> 00:21:00.169
meeting, and she said, "Sometimes

712
00:21:00.170 --> 00:21:01.879
all you can do is say to them,

713
00:21:01.880 --> 00:21:02.959
'Could you please just turn the

714
00:21:02.960 --> 00:21:04.969
oxygen off while you're smoking.'"

715
00:21:04.970 --> 00:21:05.869
Like they're not going to stop

716
00:21:05.870 --> 00:21:08.449
smoking, and they need the oxygen.

717
00:21:08.450 --> 00:21:10.459
And I really love

718
00:21:10.460 --> 00:21:12.169
that. That there's a negotiation,

719
00:21:12.170 --> 00:21:13.699
like, well, you know?

720
00:21:13.700 --> 00:21:14.719
Well, I don't always feel like

721
00:21:14.720 --> 00:21:16.789
taking this pill, like, okay.

722
00:21:16.790 --> 00:21:18.139
Well, let's talk about of these

723
00:21:18.140 --> 00:21:19.969
three pills, which one is the

724
00:21:19.970 --> 00:21:21.739
most important for you to take every

725
00:21:21.740 --> 00:21:23.929
day? Because in the hospital,

726
00:21:23.930 --> 00:21:25.279
it's you'll do this, and you'll wear

727
00:21:25.280 --> 00:21:26.359
this, and you'll eat this, and

728
00:21:26.360 --> 00:21:27.679
you'll go here, and you'll stay

729
00:21:27.680 --> 00:21:28.680
there.

730
00:21:29.330 --> 00:21:32.269
And it's very hard on people.

731
00:21:32.270 --> 00:21:33.619
So maybe patients-- maybe your

732
00:21:33.620 --> 00:21:35.179
patients get to be themselves a

733
00:21:35.180 --> 00:21:36.439
little bit more when they feel like

734
00:21:36.440 --> 00:21:37.249
they're in a place they can have

735
00:21:37.250 --> 00:21:37.939
some more autonomy.

736
00:21:37.940 --> 00:21:39.019
Yes.

737
00:21:39.020 --> 00:21:39.799
Yes.

738
00:21:39.800 --> 00:21:41.299
Yeah, that's interesting.

739
00:21:41.300 --> 00:21:42.769
Well, I want to ask you a little bit

740
00:21:42.770 --> 00:21:45.139
about writing as well.

741
00:21:45.140 --> 00:21:47.029
When you started as

742
00:21:47.030 --> 00:21:48.679
a nurse, you did not think, "I'm

743
00:21:48.680 --> 00:21:50.329
going to write about this." That was

744
00:21:50.330 --> 00:21:52.189
something that you did because of

745
00:21:52.190 --> 00:21:53.190
a certain experience.

746
00:21:54.140 --> 00:21:55.099
I wonder, can you talk a little bit

747
00:21:55.100 --> 00:21:56.569
about what that experience was and

748
00:21:56.570 --> 00:21:58.249
what prompted you?

749
00:21:58.250 --> 00:21:59.929
Why that particular experience led

750
00:21:59.930 --> 00:22:01.759
you to need, really, to

751
00:22:01.760 --> 00:22:02.959
write about it?

752
00:22:02.960 --> 00:22:04.909
Yes, I was still a pretty

753
00:22:04.910 --> 00:22:06.829
new nurse, and I had

754
00:22:06.830 --> 00:22:09.649
a patient who was set to go home

755
00:22:09.650 --> 00:22:11.809
that afternoon and start coughing

756
00:22:11.810 --> 00:22:14.029
up blood. And then, start

757
00:22:14.030 --> 00:22:15.889
basically

758
00:22:15.890 --> 00:22:17.449
spitting up blood or almost like

759
00:22:17.450 --> 00:22:19.279
spewing up blood and

760
00:22:19.280 --> 00:22:21.649
dying. And we

761
00:22:21.650 --> 00:22:23.899
called the code and ran the code,

762
00:22:23.900 --> 00:22:24.900
but she

763
00:22:27.410 --> 00:22:28.379
wasn't going to make it.

764
00:22:28.380 --> 00:22:29.449
And she didn't make it.

765
00:22:29.450 --> 00:22:30.450
And

766
00:22:33.370 --> 00:22:35.589
I couldn't get past the experience.

767
00:22:35.590 --> 00:22:36.939
I mean, I went back to work, but I

768
00:22:36.940 --> 00:22:39.069
felt very haunted,

769
00:22:39.070 --> 00:22:40.599
and I thought, "Well if I can write

770
00:22:40.600 --> 00:22:42.759
this down,

771
00:22:42.760 --> 00:22:43.884
it will be contained." And

772
00:22:45.520 --> 00:22:46.599
that doesn't really work.

773
00:22:46.600 --> 00:22:47.949
I feel like basically what I've

774
00:22:47.950 --> 00:22:49.899
realized is you never get over

775
00:22:49.900 --> 00:22:51.639
something like that, but you make

776
00:22:51.640 --> 00:22:53.199
peace with that.

777
00:22:53.200 --> 00:22:55.209
But it's just a part of

778
00:22:55.210 --> 00:22:57.039
who you are as a health care

779
00:22:57.040 --> 00:22:58.040
provider.

780
00:22:59.320 --> 00:23:01.269
And when I talk about it, I see

781
00:23:01.270 --> 00:23:02.739
a lot of nods in the audience.

782
00:23:02.740 --> 00:23:04.599
So I think it's a pretty common

783
00:23:04.600 --> 00:23:05.559
experience.

784
00:23:05.560 --> 00:23:07.509
That first sudden, violent

785
00:23:07.510 --> 00:23:08.510
death.

786
00:23:09.160 --> 00:23:11.259
But I liked what I wrote, and

787
00:23:11.260 --> 00:23:13.119
so I thought, "Well, aim high.

788
00:23:13.120 --> 00:23:14.229
I'm going to send this to the New

789
00:23:14.230 --> 00:23:16.299
York Times." And actually, a friend

790
00:23:16.300 --> 00:23:18.129
of my brother's is

791
00:23:18.130 --> 00:23:20.019
on the editorial staff, and I

792
00:23:20.020 --> 00:23:21.579
sent it somewhere else to the

793
00:23:21.580 --> 00:23:23.019
magazine. I never heard from them,

794
00:23:23.020 --> 00:23:24.459
but he said, "You know, this is

795
00:23:24.460 --> 00:23:25.929
really good. I hope this is okay." I

796
00:23:25.930 --> 00:23:27.609
sent it to the Science Times, and

797
00:23:27.610 --> 00:23:28.809
they liked it.

798
00:23:28.810 --> 00:23:30.159
And they took it.

799
00:23:30.160 --> 00:23:32.529
So very, very excited.

800
00:23:32.530 --> 00:23:34.329
Took six months to actually get into

801
00:23:34.330 --> 00:23:35.330
print.

802
00:23:37.310 --> 00:23:39.429
But then, when it came

803
00:23:39.430 --> 00:23:42.189
out, it got a huge,

804
00:23:42.190 --> 00:23:44.019
huge national

805
00:23:44.020 --> 00:23:45.909
reaction, which I'm not

806
00:23:45.910 --> 00:23:47.139
saying as a way of bragging.

807
00:23:47.140 --> 00:23:49.299
I really didn't expect it at all.

808
00:23:49.300 --> 00:23:51.429
And I started hearing from editors

809
00:23:51.430 --> 00:23:53.529
and agents saying,

810
00:23:53.530 --> 00:23:55.149
"This is a voice. We never hear the

811
00:23:55.150 --> 00:23:57.189
voice of a bedside nurse,"

812
00:23:57.190 --> 00:23:59.289
which was so incredibly

813
00:23:59.290 --> 00:24:01.749
empowering to me.

814
00:24:01.750 --> 00:24:03.129
And you've written more or less

815
00:24:03.130 --> 00:24:05.019
continuously since then.

816
00:24:05.020 --> 00:24:06.849
In the times I mentioned earlier,

817
00:24:06.850 --> 00:24:08.919
all of the attention that you got

818
00:24:08.920 --> 00:24:09.939
for the piece you wrote about

819
00:24:09.940 --> 00:24:12.099
doctor-nurse relationships in 2011,

820
00:24:12.100 --> 00:24:13.359
I think. You mentioned in one

821
00:24:13.360 --> 00:24:14.949
interview I read that you actually

822
00:24:14.950 --> 00:24:16.209
had to talk to an administrator

823
00:24:16.210 --> 00:24:18.339
after that. So that's one

824
00:24:18.340 --> 00:24:20.259
kind of, I guess,

825
00:24:20.260 --> 00:24:22.089
repercussion of being a public

826
00:24:22.090 --> 00:24:23.293
writer and being a nurse.

827
00:24:23.294 --> 00:24:25.179
How has that

828
00:24:25.180 --> 00:24:26.859
experience been for you all along

829
00:24:26.860 --> 00:24:28.299
the way? Are you looked at with some

830
00:24:28.300 --> 00:24:29.229
kind of suspicion?

831
00:24:29.230 --> 00:24:30.789
I can imagine that being one way

832
00:24:30.790 --> 00:24:32.049
that people would relate to you.

833
00:24:32.050 --> 00:24:33.459
But what's that been like in

834
00:24:33.460 --> 00:24:33.729
general?

835
00:24:33.730 --> 00:24:35.319
Yeah, there's definitely been

836
00:24:35.320 --> 00:24:36.609
suspicion.

837
00:24:36.610 --> 00:24:38.139
There were nurses who loved what I

838
00:24:38.140 --> 00:24:40.089
did, and there were

839
00:24:40.090 --> 00:24:42.129
a few nurses who,

840
00:24:42.130 --> 00:24:45.099
for different reasons, didn't.

841
00:24:45.100 --> 00:24:47.529
And I sort of worked with

842
00:24:47.530 --> 00:24:48.789
talking to them and saying, "Oh, I

843
00:24:48.790 --> 00:24:49.959
was thinking about writing about

844
00:24:49.960 --> 00:24:51.939
this, and you were

845
00:24:51.940 --> 00:24:53.979
in it." And they

846
00:24:53.980 --> 00:24:55.839
were always fine with it.

847
00:24:55.840 --> 00:24:57.699
But then, there were times when,

848
00:24:57.700 --> 00:25:00.189
even when people were de-identified

849
00:25:00.190 --> 00:25:02.049
or they just they felt kind

850
00:25:02.050 --> 00:25:03.939
of exposed, even though no one would

851
00:25:03.940 --> 00:25:06.069
know who they were.

852
00:25:06.070 --> 00:25:08.019
And the hard thing for me was that

853
00:25:08.020 --> 00:25:09.969
people wouldn't necessarily

854
00:25:09.970 --> 00:25:12.579
come to me directly and say,

855
00:25:12.580 --> 00:25:14.439
"Here's how I feel," which

856
00:25:14.440 --> 00:25:16.659
I can see that that's hard.

857
00:25:16.660 --> 00:25:17.709
But when you're all working

858
00:25:17.710 --> 00:25:19.329
together, just I wish people had

859
00:25:19.330 --> 00:25:20.330
done that, but whatever.

860
00:25:21.580 --> 00:25:23.439
But since leaving

861
00:25:23.440 --> 00:25:25.779
that job, I found more hospitable

862
00:25:25.780 --> 00:25:26.780
employers.

863
00:25:27.910 --> 00:25:29.769
And the challenge

864
00:25:29.770 --> 00:25:31.809
for me is to just make it clear that

865
00:25:31.810 --> 00:25:33.249
I'm there to work.

866
00:25:33.250 --> 00:25:35.102
I'm not there to be super nurse

867
00:25:35.103 --> 00:25:36.266
or Theresa

868
00:25:37.300 --> 00:25:38.589
Brown, the author.

869
00:25:38.590 --> 00:25:40.269
And people get that, and they go

870
00:25:40.270 --> 00:25:42.009
with it. So they'll kind of say,

871
00:25:42.010 --> 00:25:43.509
"Oh, you're that writer, right?" And

872
00:25:43.510 --> 00:25:44.619
we sort of talk about it.

873
00:25:44.620 --> 00:25:45.579
And then I'm like, "Okay, so what

874
00:25:45.580 --> 00:25:46.419
about this patient?"

875
00:25:46.420 --> 00:25:48.159
Yeah. I imagine if you did have

876
00:25:48.160 --> 00:25:49.599
people come up to you and talk to

877
00:25:49.600 --> 00:25:51.369
you, whether they agreed with you or

878
00:25:51.370 --> 00:25:53.349
not, that would be

879
00:25:53.350 --> 00:25:55.329
a really productive experience for

880
00:25:55.330 --> 00:25:56.859
you. But instead, it's a shame that

881
00:25:56.860 --> 00:25:58.539
that's not more of the reaction that

882
00:25:58.540 --> 00:26:00.249
you get from your colleagues.

883
00:26:00.250 --> 00:26:02.439
Yeah. I would have appreciated

884
00:26:02.440 --> 00:26:04.569
that. Yeah. Like, let's

885
00:26:04.570 --> 00:26:06.909
have a conversation about this.

886
00:26:06.910 --> 00:26:09.009
But I don't know if it's

887
00:26:09.010 --> 00:26:10.719
the power of being in print that

888
00:26:10.720 --> 00:26:12.549
makes people feel intimidated

889
00:26:12.550 --> 00:26:14.619
or especially talking

890
00:26:14.620 --> 00:26:15.579
about end of life.

891
00:26:15.580 --> 00:26:17.709
That was not

892
00:26:17.710 --> 00:26:19.899
always popular in oncology

893
00:26:19.900 --> 00:26:21.789
because a lot of oncologists just

894
00:26:21.790 --> 00:26:24.059
feel like you shouldn't

895
00:26:24.060 --> 00:26:24.869
talk about that.

896
00:26:24.870 --> 00:26:26.399
You shouldn't talk about hospice.

897
00:26:26.400 --> 00:26:28.259
You just should never bring

898
00:26:28.260 --> 00:26:29.260
it up. And

899
00:26:30.420 --> 00:26:31.589
I would love it if that would

900
00:26:31.590 --> 00:26:32.590
change.

901
00:26:33.540 --> 00:26:35.729
So that created tension.

902
00:26:35.730 --> 00:26:37.379
People felt like I just shouldn't be

903
00:26:37.380 --> 00:26:39.629
going there and writing about it.

904
00:26:39.630 --> 00:26:40.409
Yeah, yeah.

905
00:26:40.410 --> 00:26:42.029
It's interesting because you said

906
00:26:42.030 --> 00:26:44.099
death-- you write this in maybe

907
00:26:44.100 --> 00:26:45.419
both of your books, but death is so

908
00:26:45.420 --> 00:26:47.429
present in your work.

909
00:26:47.430 --> 00:26:48.887
And then, also when you're writing.

910
00:26:48.888 --> 00:26:50.909
For that to be something

911
00:26:50.910 --> 00:26:51.910
that is-- that

912
00:26:53.130 --> 00:26:55.049
there's some kind of a taboo against

913
00:26:55.050 --> 00:26:56.759
talking about it. Seems like that

914
00:26:56.760 --> 00:26:57.959
would be one of the most important

915
00:26:57.960 --> 00:26:59.369
things that you could prepare

916
00:26:59.370 --> 00:27:00.359
yourself for.

917
00:27:00.360 --> 00:27:02.069
Yeah. Well, that gets back to the

918
00:27:02.070 --> 00:27:03.359
question you asked at the start

919
00:27:03.360 --> 00:27:05.279
about are we prepared to talk to

920
00:27:05.280 --> 00:27:06.532
patients about death and not

921
00:27:08.000 --> 00:27:09.889
really. I mean, I even remember, as

922
00:27:09.890 --> 00:27:12.079
a student, having

923
00:27:12.080 --> 00:27:14.479
a patient who the husband

924
00:27:14.480 --> 00:27:16.309
had made the decision to put

925
00:27:16.310 --> 00:27:18.649
his wife in hospice.

926
00:27:18.650 --> 00:27:20.239
I don't remember why, but it was

927
00:27:20.240 --> 00:27:21.379
this patient that ended up doing a

928
00:27:21.380 --> 00:27:22.317
kind of write-up about.

929
00:27:22.318 --> 00:27:23.899
And my instructor said, "Well,

930
00:27:23.900 --> 00:27:25.609
you're just basically sending this

931
00:27:25.610 --> 00:27:27.559
woman to the funeral home." I

932
00:27:27.560 --> 00:27:29.243
said, "You know, no.

933
00:27:29.244 --> 00:27:31.609
This is the husband's decision.

934
00:27:31.610 --> 00:27:33.169
It's very well-founded." And I

935
00:27:33.170 --> 00:27:35.599
actually ended up

936
00:27:35.600 --> 00:27:37.879
talking to him a fair amount about

937
00:27:37.880 --> 00:27:38.749
it.

938
00:27:38.750 --> 00:27:40.609
And that was kind

939
00:27:40.610 --> 00:27:42.199
of the start of saying, "Oh, I can

940
00:27:42.200 --> 00:27:44.029
do this." It's not you don't

941
00:27:44.030 --> 00:27:45.469
know you can do it because we don't

942
00:27:45.470 --> 00:27:47.869
get a lot of opportunities in life.

943
00:27:47.870 --> 00:27:48.709
Yeah.

944
00:27:48.710 --> 00:27:50.599
There's a fascinating study

945
00:27:50.600 --> 00:27:51.619
that you've referenced, and that is

946
00:27:51.620 --> 00:27:53.299
also, I think, I read in Atul

947
00:27:53.300 --> 00:27:54.379
Gawande. His latest book from

948
00:27:54.380 --> 00:27:56.629
Massachusetts General Hospital, of

949
00:27:56.630 --> 00:27:58.639
patients who accept hospice

950
00:27:58.640 --> 00:28:00.799
care, not only having less suffering

951
00:28:00.800 --> 00:28:02.119
towards the end of their lives but

952
00:28:02.120 --> 00:28:03.049
actually living longer.

953
00:28:03.050 --> 00:28:03.949
Yes.

954
00:28:03.950 --> 00:28:04.950
Yes.

955
00:28:06.500 --> 00:28:07.459
It's not you're saying sending this

956
00:28:07.460 --> 00:28:09.799
person to the funeral home.

957
00:28:09.800 --> 00:28:10.999
It's quite the opposite, in fact. The

958
00:28:11.000 --> 00:28:11.869
numbers show.

959
00:28:11.870 --> 00:28:12.799
Right.

960
00:28:12.800 --> 00:28:14.059
And that's one of the big

961
00:28:14.060 --> 00:28:15.799
misconceptions we have to struggle

962
00:28:15.800 --> 00:28:17.779
against in hospice that

963
00:28:17.780 --> 00:28:19.669
people think the goal

964
00:28:19.670 --> 00:28:21.859
of hospice is for people to die.

965
00:28:21.860 --> 00:28:22.909
And it's not.

966
00:28:22.910 --> 00:28:24.769
It's for people to live the

967
00:28:24.770 --> 00:28:27.049
absolutely best life they can

968
00:28:27.050 --> 00:28:28.729
until they die.

969
00:28:28.730 --> 00:28:30.649
And certainly, if there was someone

970
00:28:30.650 --> 00:28:32.239
on hospice with a certain kind of

971
00:28:32.240 --> 00:28:34.129
cancer and an amazing treatment

972
00:28:34.130 --> 00:28:36.289
came out. And they wanted to

973
00:28:36.290 --> 00:28:38.119
try it, and they could stand

974
00:28:38.120 --> 00:28:39.799
it, I'd be the first person to say,

975
00:28:39.800 --> 00:28:41.259
"You should definitely do that."

976
00:28:42.470 --> 00:28:44.539
We want everybody to live as well

977
00:28:44.540 --> 00:28:45.540
as they can, but we

978
00:28:46.830 --> 00:28:48.029
are all going to die.

979
00:28:48.030 --> 00:28:49.349
It sucks, but it's true.

980
00:28:49.350 --> 00:28:51.569
That's the effort to prolong

981
00:28:51.570 --> 00:28:52.349
life at all costs.

982
00:28:52.350 --> 00:28:54.359
It seems like there's

983
00:28:54.360 --> 00:28:56.399
a strange kind of goal

984
00:28:56.400 --> 00:28:57.656
of immortality somehow behind that.

985
00:28:57.657 --> 00:29:00.149
Once you accept mortality,

986
00:29:00.150 --> 00:29:02.009
then you can get all kinds of

987
00:29:02.010 --> 00:29:03.263
positive results from that.

988
00:29:03.264 --> 00:29:05.099
That otherwise, you wouldn't

989
00:29:05.100 --> 00:29:06.449
be able to do. Quality of life being

990
00:29:06.450 --> 00:29:07.019
one of them.

991
00:29:07.020 --> 00:29:07.949
Right.

992
00:29:07.950 --> 00:29:09.749
Right. And just do you want to end

993
00:29:09.750 --> 00:29:11.609
your life in

994
00:29:11.610 --> 00:29:13.559
an ICU hooked up to machines?

995
00:29:13.560 --> 00:29:15.329
You can't talk to your family.

996
00:29:16.450 --> 00:29:18.269
And if somebody wants that,

997
00:29:18.270 --> 00:29:19.889
that's fine.

998
00:29:19.890 --> 00:29:21.839
But do people understand

999
00:29:21.840 --> 00:29:23.999
that they're making a choice,

1000
00:29:24.000 --> 00:29:26.129
and they could be at home?

1001
00:29:26.130 --> 00:29:27.629
They could have the people they love

1002
00:29:27.630 --> 00:29:28.649
around them. They could actually

1003
00:29:28.650 --> 00:29:30.419
have conversation.

1004
00:29:30.420 --> 00:29:32.189
And usually, if you present it like

1005
00:29:32.190 --> 00:29:34.049
that, people

1006
00:29:34.050 --> 00:29:36.059
will choose that.

1007
00:29:36.060 --> 00:29:37.709
And then, it's how do we help them

1008
00:29:37.710 --> 00:29:39.819
make the most of that time.

1009
00:29:39.820 --> 00:29:40.820
Yeah.

1010
00:29:41.970 --> 00:29:43.139
Well, one other question about your

1011
00:29:43.140 --> 00:29:44.819
writing I wanted to ask is about

1012
00:29:44.820 --> 00:29:46.619
your style.

1013
00:29:46.620 --> 00:29:48.089
As someone who was an English

1014
00:29:48.090 --> 00:29:49.919
professor, I'm sure you're aware

1015
00:29:49.920 --> 00:29:51.179
of style. The writing style.

1016
00:29:51.180 --> 00:29:52.289
You paid a lot of attention to it in

1017
00:29:52.290 --> 00:29:53.699
your past life.

1018
00:29:53.700 --> 00:29:55.109
How did you come to the style you

1019
00:29:55.110 --> 00:29:56.099
currently use? Have you thought

1020
00:29:56.100 --> 00:29:57.289
about it a lot over the years?

1021
00:29:57.290 --> 00:29:59.039
Was it something you worked on a lot

1022
00:29:59.040 --> 00:30:00.419
before you sent your first piece

1023
00:30:00.420 --> 00:30:02.639
out? And how has it changed since

1024
00:30:02.640 --> 00:30:04.079
you've been writing over the years,

1025
00:30:04.080 --> 00:30:05.279
or how do you think about that?

1026
00:30:05.280 --> 00:30:07.169
Oh, I think

1027
00:30:07.170 --> 00:30:09.089
the truth is I don't think about

1028
00:30:09.090 --> 00:30:10.090
it. It's just what

1029
00:30:10.920 --> 00:30:11.920
I do.

1030
00:30:13.480 --> 00:30:15.149
It's sort of what goes on in my

1031
00:30:15.150 --> 00:30:16.619
head.

1032
00:30:16.620 --> 00:30:19.499
That kind of spare

1033
00:30:19.500 --> 00:30:20.969
style.

1034
00:30:20.970 --> 00:30:23.129
And when I try to get too

1035
00:30:23.130 --> 00:30:25.079
flowery or metaphorical, it usually

1036
00:30:26.130 --> 00:30:27.509
just is like embarrassingly bad.

1037
00:30:28.650 --> 00:30:29.970
Those must be in early drafts.

1038
00:30:31.050 --> 00:30:33.149
So I

1039
00:30:33.150 --> 00:30:35.489
think what I've learned is what I'm

1040
00:30:35.490 --> 00:30:36.490
good at.

1041
00:30:37.320 --> 00:30:38.320
Interesting

1042
00:30:39.570 --> 00:30:41.399
detail, which I hope it's

1043
00:30:41.400 --> 00:30:43.559
interesting to other people, but

1044
00:30:43.560 --> 00:30:45.959
I'm also very spare with commas.

1045
00:30:45.960 --> 00:30:47.879
And so, the copy

1046
00:30:47.880 --> 00:30:50.009
editor went through and added

1047
00:30:50.010 --> 00:30:51.059
a whole bunch of commas.

1048
00:30:51.060 --> 00:30:52.859
And then, I went through and took

1049
00:30:52.860 --> 00:30:53.860
some of them out

1050
00:30:54.990 --> 00:30:56.909
and then got a note back

1051
00:30:56.910 --> 00:30:58.499
saying, "Well, we

1052
00:30:59.610 --> 00:31:01.589
went along with the comma decisions

1053
00:31:01.590 --> 00:31:03.329
to accommodate the writer's spare

1054
00:31:03.330 --> 00:31:04.330
style."

1055
00:31:08.070 --> 00:31:10.829
So the point being that

1056
00:31:10.830 --> 00:31:13.199
even at that level, it was important

1057
00:31:13.200 --> 00:31:15.539
to me to have a sense of

1058
00:31:15.540 --> 00:31:18.839
flow and control over the sentences.

1059
00:31:18.840 --> 00:31:20.699
That's just the way it

1060
00:31:20.700 --> 00:31:21.479
comes out.

1061
00:31:21.480 --> 00:31:22.480
Yeah.

1062
00:31:23.340 --> 00:31:25.319
I was kind of thinking about it as

1063
00:31:25.320 --> 00:31:26.369
I was reading and knowing your

1064
00:31:26.370 --> 00:31:27.629
background. And I had thought about

1065
00:31:27.630 --> 00:31:29.219
it in terms of the-- some of the

1066
00:31:29.220 --> 00:31:30.119
words that came to mind were

1067
00:31:30.120 --> 00:31:31.949
measured and kind of respectful in

1068
00:31:31.950 --> 00:31:33.929
a way. And then, I read a passage

1069
00:31:33.930 --> 00:31:35.669
of yours talking about the kinds of

1070
00:31:35.670 --> 00:31:36.659
relationships you have in

1071
00:31:36.660 --> 00:31:37.769
friendships you form with other

1072
00:31:37.770 --> 00:31:39.569
nurses, and you talk about it being

1073
00:31:39.570 --> 00:31:40.619
no-nonsense.

1074
00:31:40.620 --> 00:31:41.879
And it seemed to me that it was kind

1075
00:31:41.880 --> 00:31:43.529
of the way that you were writing

1076
00:31:43.530 --> 00:31:44.789
was, in a way, kind of like

1077
00:31:44.790 --> 00:31:46.469
respectful of the work that you were

1078
00:31:46.470 --> 00:31:47.310
doing as a nurse.

1079
00:31:47.311 --> 00:31:49.229
And that it had that no-nonsense

1080
00:31:49.230 --> 00:31:50.219
kind of character to it.

1081
00:31:50.220 --> 00:31:51.420
Oh, that's interesting.

1082
00:31:52.800 --> 00:31:53.909
Yeah. Yeah.

1083
00:31:53.910 --> 00:31:55.703
I mean, I love Joseph Conrad.

1084
00:31:55.704 --> 00:31:57.269
I love Faulkner.

1085
00:31:57.270 --> 00:31:59.609
I love their incredible writing.

1086
00:31:59.610 --> 00:32:01.499
But I think the styles

1087
00:32:01.500 --> 00:32:03.809
that really speak to me are

1088
00:32:03.810 --> 00:32:06.149
Hemingway, Raymond Carver.

1089
00:32:06.150 --> 00:32:08.009
I mean, I just

1090
00:32:08.010 --> 00:32:09.010
love that spareness.

1091
00:32:10.140 --> 00:32:12.059
And apologies for mentioning all

1092
00:32:12.060 --> 00:32:13.655
women. Flannery O'Connor also has

1093
00:32:13.656 --> 00:32:14.656
that.

1094
00:32:14.970 --> 00:32:15.779
I mean, all men.

1095
00:32:15.780 --> 00:32:17.099
I'm sorry. Mentioning all men.

1096
00:32:17.100 --> 00:32:18.100
Yeah.

1097
00:32:18.600 --> 00:32:20.699
Well, it's really the very-- it

1098
00:32:20.700 --> 00:32:21.700
creates a very moving work

1099
00:32:23.910 --> 00:32:24.750
for me when I read.

1100
00:32:24.751 --> 00:32:25.751
Definitely.

1101
00:32:25.890 --> 00:32:26.879
My last question is, what are your

1102
00:32:26.880 --> 00:32:28.679
plans for your writing from here on?

1103
00:32:28.680 --> 00:32:29.519
Do you have anything-- I mean,

1104
00:32:29.520 --> 00:32:30.509
you're going to keep, I hope, writing

1105
00:32:30.510 --> 00:32:31.589
for The Times. But other than that,

1106
00:32:31.590 --> 00:32:32.879
are there other projects you have in

1107
00:32:32.880 --> 00:32:34.409
mind that are larger than that?

1108
00:32:34.410 --> 00:32:36.059
There will be a third book.

1109
00:32:36.060 --> 00:32:38.249
It's sort of a light

1110
00:32:38.250 --> 00:32:39.839
on the back burner of my brain, and

1111
00:32:39.840 --> 00:32:41.699
that's about as far as

1112
00:32:41.700 --> 00:32:43.109
it's gotten.

1113
00:32:44.580 --> 00:32:45.989
It might be something about

1114
00:32:45.990 --> 00:32:48.089
end-of-life and hospice, but

1115
00:32:48.090 --> 00:32:49.589
there are so many books about that

1116
00:32:49.590 --> 00:32:51.149
now. I need to make sure I have

1117
00:32:51.150 --> 00:32:53.639
something that's

1118
00:32:53.640 --> 00:32:54.750
new enough to be worthwhile to

1119
00:32:56.190 --> 00:32:57.359
say.

1120
00:32:57.360 --> 00:32:59.819
But yeah, I will keep at it.

1121
00:32:59.820 --> 00:33:01.559
Well, we look forward to more of

1122
00:33:01.560 --> 00:33:03.389
your work. And Theresa Brown, thanks

1123
00:33:03.390 --> 00:33:04.289
so much for joining us.

1124
00:33:04.290 --> 00:33:05.290
Thank you.

1125
00:33:09.089 --> 00:33:10.079
That's it for this edition of Being

1126
00:33:10.080 --> 00:33:11.699
Human. Stay tuned next time when my

1127
00:33:11.700 --> 00:33:13.109
guest will be Jeff Williams,

1128
00:33:13.110 --> 00:33:14.309
professor of English at Carnegie

1129
00:33:14.310 --> 00:33:15.989
Mellon University and author of How

1130
00:33:15.990 --> 00:33:17.579
to Be an Intellectual.

1131
00:33:17.580 --> 00:33:18.580
Thanks for listening.